Robert attended a recent Parliamentary event hosted by Muscular Dystrophy UK and Spinal Muscular Atrophy UK to raise awareness of their campaign to have the drug Spinraza approved by NICE and thus available to patients on the NHS. Robert met with his constituents, Mat and Jo, who are campaigning for access to the drug treatment for their daughter, who has Spinal Muscular Atrophy.
Speaking after the event, Robert said: "Very glad to support my constituents at an important event to press the campaign for the drug Spinraza to be approved by NICE so that their daughter, and so many others, have access to the treatment they need. I will be following up by writing to the Chief Executive of NICE to express concern about the delay in the appraisal of this potentially life-changing treatment."
